Associated Sites

Associated Websites

FDSSUK Facebook page (read some Facebook comments here)

The American Fibrous Dysplasia Foundation

The Pagets Association (a chronic bone disorder)

Contact a Family (for families with disabled children)

Rudy Study (in rare diseases of the bones, joints and blood vessels)

Birthmark Support Group

NIH Library Of Medicine

The Magic Foundation, USA

International Coalition Of Organisations Supporting Endocrine Patients

Here a few websites of our European partners (currently reaching out to Germany, Austria and Switzerland)

Displasia Fibrosa, Spain

Fibreuze Dysplasie, Holland

EAMAS, Italy

L’Écheveau Solidaire, France

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