Fibrous Dysplasia Support Society

Specialists with experience in Fibrous Dysplasia. This list was last updated October 2008.

A set of four DVDs that were professionally recorded at the 2006 Fibrous Displasia Foundation Convention in the USA. These contain about six hours of medical presentations on Fibrous Dysplasia and McCune Albright Syndrome given to patients and carers by the following:

Michael Collins, MD:	Overview of the conditions
Janice Lee, DDS, MD:	Craniofacial FD
Robert Stanton, MD:	Paediatric orthopaedic surgeon
Frederick Singer, MD:	Use of Bisphosphonates for FD
Marilyn Kelly, RN:	Pain control
Lynn Lindaman, MD:	Adult orthopaedic surgeon

A CD which contains eleven files with presentations from the 2007 Fibrous Dysplasia Foundation Convention. You can download the files to your computer and play them on iTunes. You will be able to see the PowerPoint slideshow that the presenter was using and listen to their presentation. The files are:

Dr. Michael Collins:	FD and MAS
Dr. Lynn Lindaman:	Orthopaedic issues
Dr. Craig Dufresne:	Craniofacial issues
Dr. Linda DiMeglio:	Bisphosphonates
Dr. Erica Eguster:	Pediatric endrocrine issues
Dr. Michael Collins:	Adult endrocrine issues
Annie Miller:	Perspectives of a parent
Tiffany Cavoretto:	Growing up with FD/MAS
Charlie Harles:	Living with FD as an adult
Marilyn Kelly, RN:	Pain and FD
Dr. Eric Imel:	FD and Phosphates