FDSSUK BREAKING NEWS
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Current News
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10/11/2023
Online Event - Pain Management in FD and MAS Community
We are delighted to announce that we are planning to deliver our first online event to be held on the 21st November 2023, 7pm to 8pm. Professor Kasim Javaid, Chair of The FDSSUK Medical Advisory Board will host a presentation and discussion with attendees. See the proposed agenda here. Zoom details to follow, watch this space.
2702/2022
Rare Diseases Day: 28th February 2022
Keep an eye open on our Twitter, Facebook and other social media feeds for information regarding the 2022 Rare Diseases Day events and information. Don't forget to keep an eye open on our partner International Organisations too !
FD/MAS Alliance, Patiëntenvereniging Fibreuze Dysplasie, ASOCIACIÓN DE DISPLASIA FIBROSA – ADF and European Association for McCune-Albright Syndrome