Associated Websites
FDSSUK Facebook page (read some Facebook comments here)
The American Fibrous Dysplasia Foundation
The Pagets Association (a chronic bone disorder)
Contact a Family (for families with disabled children)
Rudy Study (in rare diseases of the bones, joints and blood vessels)
Birthmark Support Group
NIH Library Of Medicine
The Magic Foundation, USA
International Coalition Of Organisations Supporting Endocrine Patients
Here a few websites of our European partners (currently reaching out to Germany, Austria and Switzerland)
Displasia Fibrosa, Spain
Fibreuze Dysplasie, Holland
EAMAS, Italy
L’Écheveau Solidaire, France