Obtaining FDSSS Support
We understand the importance of being able to query concerns you may have regarding diagnosis and potentially long term impacts on yourself and family from Fibrous Dysplasia and / or McCune-Albright Syndrome. There are a number of avenues open to you to ask questions and seek advice, with a directory of online Internet based links being provided on the leaflets here. They are provided in both A4 format
and A5 format
and can be distributed to anyone you feel may benefit, albeit we just ask that the attribution is made to the FDSSUK.
The development of the Medical Advisory Board
will eventually provide a gateway to request quite specific medical advice and guidance from some of the worlds leading experts in the areas of FD and MAS. The draft Terms of Reference for the MAB under development can be found here.